Associate Director, Patient Advocacy, Skeletal Dysplasia

About the role

BridgeBio is looking for an Associate Director, Patient Advocacy, Skeletal Dysplasia, reporting to the Executive Director of International Patient Advocacy. The role develops and executes patient advocacy activities supporting clinical development and commercialisation, primarily in Europe, Latin America and other international markets, safeguarding long-term patient trust and community relationships. Fluency in both Portuguese and Spanish is required.

Key responsibilities

• Serve as primary liaison to patient advocacy organisations in Latin America, Europe and other markets, building compliant, long-term relationships
• Develop the patient advocacy strategy and implement an international advocacy plan aligned with local priorities
• Represent BridgeBio at patient advocacy and community meetings and build relationships with patient organisations and local communities
• Bring patient and caregiver perspectives into clinical development, medical affairs, regulatory, market access and commercial planning
• Plan and deliver engagement activities such as advisory boards, patient organisation meetings, educational initiatives, community surveys, patient videos and input on patient-facing materials
• Adapt engagement and communications for Spanish- and Portuguese-speaking communities, keeping materials culturally relevant and accessible
• Support the Executive Director in strategic planning and oversight of advocacy budgets, including grants, sponsorships and advisory engagements
• Coordinate international grants, sponsorships and program budgets in line with policies and local requirements
• Share community insights internally while protecting patient privacy and trust
• Monitor policy and industry requirement changes and promote a patient-first culture

Required profile

• Bachelor's degree, preferably in a scientific field; advanced degree preferred
• 5+ years of patient advocacy or community engagement experience, including 3+ years in biotech/pharma
• Experience with rare disease communities; experience with skeletal dysplasia or other genetic rare conditions preferred
• Fluency in Spanish and Portuguese, strong professional English; knowledge of German and French is an advantage
• Demonstrated ability to build trusted partnerships with patient organisations across countries and cultures, ideally including Latin America
• Familiarity with Europe and Latin American markets preferred
• Willingness and ability to travel frequently across Europe, Latin America and other geographies

What we offer

• Market-leading compensation and a remote/hybrid work model
• Career development through feedback, education and professional development programs
• Benefits that vary by location; for full-time U.S.-based roles, 401(k) with employer match, ESPP, commuter benefits, and employer-paid medical, dental and vision coverage
• Expanded mental health support, flexible paid time off, paid medical and parental leave